The American Foundation for the Blind has compiled an extensive list of resources for families living with low vision or blindness. I highly recommend you check out the Family Connect section of their website! Please share any successes with the resources in the comments section. — Read on http://www.afb.org/blindness-and-low-vision/familyconnect-8160
I recently re-read the book, The Alchemist by author, Paulo Coelho. I try to read it every few years. He was on to something when he wrote “every blessing ignored, becomes a curse.” See, God puts people, as well as obstacles, and even tragedies, in our path with great purpose. Sometimes bad things have toContinue reading “Finding the Magic in Unanswered Prayers”
Fighting for the needs of my children while battling depression and anxiety is the hardest thing I have ever done. It is a perpetual roller coaster of emotions without any sense of stability or predictability at all. The courage needed to fix it and the consistent work that is required to make lasting change is now part of my daily life. This ongoing battle is relentless in its persistence. That’s ok though because I am too!
I talk about this day so often. He was TWO YEARS OLD! He is legally blind. They said he would struggle to read, write, run….hell-they said he’d struggle to do tons of things. Steve and I nodded our heads and ignored their opinions about our sons’ supposed limitations. We promised each other our boys wouldContinue reading “Prove Them Wrong”
What a lot of people don’t understand is that Sensory Processing Disorder, or SPD, is a spectrum disorder. Which basically means, one person with SPD may over-respond to the touch sensation and find clothing, physical contact, or other sensory input as unbearable. Another might under-respond in reaction to stimulation
Those who follow me know my son and I both have ADHD. I have spent the last six and a half years engrossed in discovering and treating not only my son’s diagnosis but my own as well. It has been my life’s biggest challenge. It is inspiring, defeating, exhausting, sad, and enlightening all at once. Continue reading “ADHD Awareness Month”
I want to write a children’s book where the main characters have albinism and other special needs. I’m going to enroll in a Parent Advocacy class with The Federation of Children with Special Needs. I will become a certified Parent Advocate.
Losing control is not a luxury I can afford. Yelling and showing emotion only overloads his sensory system even more, making things worse. So, I do what the behavioral therapists have taught me to do, I stay calm, give as little attention as possible and stick to my guns. It sucks.
I had to make a choice for them that didn’t match the footprint of my soul. It wasn’t really a choice at all, that’s just what we do for our children. Their needs become all that matters.
April 15, 2015 My Dear Sweet JoJo (or Joseph as you prefer these days), Our days are swirling by in a whirlwind of chuggington, chicken nuggets, playdates with Cub Cadets, and afternoons of Uno and Candyland. I find myself longing to spend every possible moment with you and your brother. You started coming into ourContinue reading “Lucky Duck”