You don't have to wait for Monday to get yourself back on track. The universe does not care what day it is! If something fuels your soul and you know it does, don't wait!! Do it NOW, for me that is #202020. What do you do to bring joy and magic to your soul? So if… Continue reading Thursday is the New Monday
I want to write a children's book where the main characters have albinism and other special needs. I'm going to enroll in a Parent Advocacy class with The Federation of Children with Special Needs. I will become a certified Parent Advocate.
Dear Stephen Jr. Every month Everyday, Infinity Oh My little man! You are such a unique soul. We… Continue reading A Love Letter to My Oldest Son
Mr. and Mrs. C I have the results of your son’s vision exam. As we suspected he has albinism. Have you heard of that before?
Is that when someone is an albino?
Yes, but that term isn’t really used anymore. Listen, I have a lot of information to share with you. First, I need you to know that people with albinism are usually legally blind too. That means that their vision is often around 20/200. I know this is a lot to take in and I want to give you some time to process this information but before I leave I need to reassure you that your son will live a “normal” life. In fact, people with albinism often have extraordinary gifts intellectually, musically, and socially.
Can you talk with us now?
Of course I can. Let me get you a notebook and a pen so you can write things…
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When we were young there was no internet. This change alone has redefined everything.